Now that over ninety per cent of Australians has a My Health Record, we need to start using it. That also means becoming familiar with the dashboard and settings. Most people are not aware that they can control who sees what information in their record.
For example, you have the option to switch off secondary use of data. Secondary use is when third parties use your health information for purposes not directly related to your care.
This includes public health policy development and research – but also many other purposes. If you want to know more, read my blog post about this topic.
When a new MyHR record is created, your data will automatically be shared for other purposes. If you do not want this, you need to click the ‘do not participate’ button.
Unfortunately, this button is not available under the ‘privacy & access’ tab where it should be so it may be hard to find. Look for the button at the bottom of the ‘profile & settings’ tab (see screenshot below).
It is your choice to share or not share your data. There is also a helpful video available with instructions on how to control settings for secondary use of data.